Dedicated to uncovering Tethered Cord Syndrome in rare diseases
Our initiative is advancing knowledge of Tethered Cord Syndrome (TCS) through collaborative research and patient-centered inquiry, with the goal of improving diagnosis, treatment, and quality of life for those affected.
TCS is an under-recognized condition within the rare disease spectrum. By combining clinical research, patient experiences, and medical education, we aim to increase awareness, drive innovation in care, and support families navigating this complex disorder.
Our Team
The TCSRI brings together researchers, clinicians, and advocates committed to advancing understanding and care for Tethered Cord Syndrome. Each member brings a unique perspective to this work—learn more about the people behind the initiative.
Patricia Weltin
Executive Director/Medical Innovation Lead
Petra Klinge, MD
Neurosurgeon/Lead Researcher
Pankaj Agrawal, MBBS, MMSc
Neonatologist/Researcher